Hunger For Justice

About once every month, I buy a patient or a patient and their family a meal. This is always embarrassing for them. Parents especially struggle when I insist that they must also pick something for themselves. I understand this. No one likes to admit that they’re struggling to feed their family. I did learn, however, that when I didn’t insist that parents eat themselves that food was often saved for other children at home. At the same time as I would feed people, I would call the food bank closest to their home to arrange for the family to pick up food on the way home. Another embarrassment for them, but I insist, telling the family that they can volunteer at the food bank once they are managing themselves.

As a doctor, I find it discouraging that there is so much food insecurity in a country like Canada. Food Secure Canada estimates that 4 million Canadians are food-insecure – 1.15 million of these Canadians are children. In northern and remote communities, the situation is even worse. It is estimated that 2/3 of indigenous children are food insecure. Given how unlikely it is that families are volunteering this information, I am confident that these numbers are low. I have met teenagers who are not even aware that they are not getting enough to eat. They are told that adolescents are “always hungry” and they believe that their own hunger is a normal state. I advise residents and medical students to find out in detail what their patients are eating so that they can truly assess whether their patients are getting enough to eat. Adolescents need a lot of nourishment, especially adolescent boys. We have known this since the time of Plato who said, “A boy is an appetite with a skin pulled over it”.

Food Secure Canada works to advance food security and food sovereignty through 3 goals: zero hunger; safe, healthy food; a sustainable food system. To help the youth that I see, I encourage schools to support breakfast and lunch programs. Snacks and meals are available in many of our Outpatient and Day programs. In my neighbourhood, the Parkdale Food Centre works with restaurants, schools and even the local theatre to grow food all year long and to help young people learn to cook. Community meals are a part of the social support network across Canada, often run by faith groups but also by food banks and restaurants and other agencies. Despite all these efforts, people still go hungry. The Ottawa Mission serves 1300 meals per day and food banks estimate that over 40,000 people in Ottawa are food insecure. Last year in Toronto, 136,000 children needed school lunches.

There are just over one hundred youth seen in our outpatient program at my hospital every week. These youth and their families are already managing at least one family member’s chronic health condition. Given how many of these are from marginalized groups, it’s likely that as many as 40% are not getting enough to eat, leading to even more health problems. We have not been able to figure out who most of them are. I don’t know if food banks and social agencies could manage to help everyone if we did.

The lesson from my experience is that every doctor in Canada, no matter where we practice, no matter how prosperous our community, needs to ask their patients if they are getting enough to eat. Once we have asked, we then need to accept that many, many people will not be truthful about this. They are too ashamed.

Our patients are hungry, and we must be hungry also…for justice.

(Note: This is a picture of one of the Parkdale Food Centre’s growing towers.)

More on Safe Injection Sites

The debate on safe, supervised injection sites is intensifying in Ottawa, with a lot of media interest. On Tuesday morning I was interviewed on CBC Ottawa Morning regarding this issue.

I was pleased with how fairly I was interviewed by Robyn Bresnahan. She really elicited all the concerns in this complicated issue. Here is the link:

http://www.cbc.ca/player/play/2686690858/

Thank you to everyone speaking up about this important issue. Please look back through the last few items and let us know what you think.

SoMe: You, Me and Health Care

Have you ever participated in an online event? If not, let me introduce you to these and consider briefly how such “virtual meetings” might improve the conversations we are all having about health care.

Last Wednesday, I participated in two online events – I can actually say that I participated in both events at the same time. One was an hour long tweet chat from 9-10 pm. This was the weekly @hcsmca tweet chat. You can find out more about this weekly event here along with a very detailed description of how you can join. This online event is held every Wednesday , usually from 1-2 pm Eastern Time. It is held from 9-10 pm Eastern Time the last Wednesday of every month. You can find out what the weekly topic is by following @hcsmca on twitter. The chat is for anyone interested in health care.

The second event I participated in was #BellLetsTalk Day. This event was inaugurated in 2010 as part of an effort to end the stigma surrounding psychiatric illness. Over $6 million was raised this year alone in a twenty-four hour online event. Bell pledged 5 cents for every post, tweet, retweet, text, etc. that contained #BellLetsTalk in the text. Throughout the day, whenever I had a minute, I would generate more retweets and add to conversations. I’ve talked about #BellLetsTalk before, however, so I’m not going to consider it further.

What interests me most about online communication is that it breaks down barriers, allowing me to participate in conversations from the comfort of my own home. I am the kind of person who goes to community meetings and learns so much that I wonder why I don’t go more often. However, I quickly realize that I often don’t feel like battling traffic or weather to get to meetings. Well, there is no need to worry about either at an online meeting. An online meeting is very accessible.

The topics for these meetings can be very timely. For example, the #hcsmca tweet chat last week considered whether health care professionals have the same rights of free speech on social media as other users. This is the summary of the conversation.

The chat considered two blogs, one of which was mine. The comments caused me to consider how I decide what to say and how I express my opinion.  I am as careful as I can be not to release another’s story. On this blog, I always state what permissions I have obtained and note whether the information is already in the public domain. I do try to present views or opinions that have a different angle that those that have already been publicly expressed, but my goal is to do this in such a way as to be heard. I do change my mind when convinced that I have erred or not had all the evidence. Some people seem to more freely express their opinions online than in person, as if it is easier to speak their mind when they do not have to look someone in the eye. This is one of the risks, blurting something out in a tweet.

Personally, I miss people’s reactions, verbal and nonverbal, when I am expressing an opinion. These are communications that I rely on when deciding whether what I am saying makes sense or not. In this respect, social media lets me down. What is not disappointing, however, is being able to discuss a clinical problem from the perspective of patient, care provider, family member and healthcare journalist. There are so many elements of a clinical issue that can be considered in an online forum because literally anyone can participate. Also, if I am reminded of an especially good article or website during an event, I can find it because I have all my own resources at my fingertips. I like that – how often have you wanted to answer someone right away with the research that proves your point?

There is so much potential for social media and the internet in healthcare that I cannot get my head around it. The #hcsmca chat on Wednesdays begins to consider some of that potential. I am finding that the views expressed are helping me to be more informed about healthcare and the internet.

With my new interest, I am reading articles I would never have looked at previously. For example, look at this month’s issue of Daedalus, the Journal of the American Academy of Arts and Sciences, which is entirely devoted to the internet.

Some of the concepts described are so innovative that I can barely understand them but they do convince me that online meetings promote a more thorough consideration of issues than some face-to face meetings. You should join us sometime at the #hcsmca chat and see what I mean.

2 Hospital Days

In the two weeks since I last communicated with you, I have had an unwanted but unique insight into one patient’s experience of the health care system. The patient was my husband. On December 28, he was admitted to the Civic site of the Ottawa Hospital, his respiratory infection having developed into lobar pneumonia.

I am not certain I could have convinced him to go to the Emergency Room for an assessment had the presentation not included left-sided chest pain – the one warning sign most men his age will not ignore. Fear of a heart attack in older men is more compelling than laboured breathing, sweating and shaking chills, nausea and vomiting and the respiratory tract infection that he had been experiencing. The assessment in the Emergency Room was straightforward and thorough but, in due course, my husband was admitted to hospital for intravenous antibiotics and fluids since dehydration had become a complicating factor.

Having been admitted to hospital just as the first snowstorm of the year hit, the course of Andrew’s treatment was uncomplicated and his symptoms resolved within one day. In fact, I had expected him to be discharged after twenty-four hours but the schedule of ward rounds was thrown off both by the holiday and by the weather.

When I visited him on the first day, while he was much improved, he was also clearly shaken by his experience of how unwell others around him were. He had been kept awake by patients shouting and screaming, their suffering so severe that my husband wondered how the nurses and other ward staff actually endured the stress of these situations, day after day and night after night. He marveled at their cheeriness with him and their professionalism and care for the woman in the next bed who was unresponsive to her caregivers’ ministrations.

The unit where he was cared for is one of the hospital’s Clinical Teaching Units in Internal Medicine. He was impressed on the one hand by the care he received but shocked by the crumbling infrastructure around him. Again, his thought was for how difficult this must be for the people who worked there every day.

My husband is a lawyer, an intelligent man with an eerie capacity for intuition. To cope with situations that are emotional, he seeks to understand them. What he observed were professionals who did not allow difficult working situations to interfere with the care they provided. Each time I visited him, he told me how much he admired me for the work that I did. It was clear that he had not completely realized the degree to which deteriorating health care equipment and decreased staffing are a factor in health professionals’ work lives. I suspect that no patient does realize this until they experience firsthand the degree to which our hospitals do not look like the facilities in General Hospital or Grey’s Anatomy.

What is perhaps more important from my perspective is that my own descriptions of the conditions and circumstances have not truly communicated the degree of concern that I have about how much health care support systems have deteriorated in the years that I have been practicing medicine. Staffing has been systematically decreased, equipment has not been replaced appropriately, buildings have been left to crumble and food and cleaning have been outsourced to the point that these do not meet the standards for nourishment and cleanliness that most health care professionals would want for themselves.

For the first day after he returned home, Andrew spoke to all those who enquired after his health about the state of the hospital and the stress the staff experienced at work. Several times, he was overcome with emotion when describing his experience. He had clearly been traumatized by the realization of what being in a hospital was like for a patient.

It has taken me fully a week to process my own thoughts about Andrew’s experience. I have always believed that the only reason Canada’s health care system continues to provide good care has to do with the people who provide that care. As funding decreases, they do the best they can to remain cheerful with patients and to overcome deteriorating conditions. In fact, we have gotten so good at doing this that it is possible that we are not expressing sufficiently well how urgent the need for change is. In my view, I have regularly spoken at home about my concerns about dwindling resources but it took an actual hospitalization for my husband to realize how dire the situation is.

I am hoping that my husband’s story will serve as a cautionary tale that it is only the health care professionals holding our system together. I was not at all surprised by the conditions he described, which is only another indication that I have learned to adapt. It is time for those of us devoted to health care to stop adapting to situations that traumatize the people we are caring for. They are clearly also traumatizing for us.

(Note: I dedicate this to the health care professionals at The Ottawa Hospital who cared for my husband – especially his doctors and nurses.)

Physician Activism: Dr. Marilyn Crabtree and a letter

In late November, Dr. Marilyn Crabtree wrote a letter to Ontario Minister of Health Dr. Eric Hoskins on behalf of the Medical Staff Association of Winchester and District Memorial Hospital. Dr. Crabtree is the Secretary Treasurer of the hospital Medical Staff Organization. The letter was to outline the doctors’ concerns about a program designed by the government to allow new family medicine graduates to practice in groups with other family doctors. The program is the New Graduate Entry Program (NGEP) and the details are outlined here: http://www.health.gov.on.ca/en/pro/programs/ohip/bulletins/11000/bul11138.pdf

This is the text of Dr. Crabtree’s letter:

“Dear Minister Hoskins,

I am writing on behalf of the Medical Staff Organization of Winchester and District Memorial Hospital to advise you of the serious concerns this Hospital and its Medical Staff have regarding your Ministry’s “New Graduate Entry Program”. In its current form, this policy will devastate and possibly close the Winchester and District Memorial Hospital within the 3 year time frame of the current proposal.

Our Hospital is a vibrant and active facility. We have won provincial awards for our Maternity Care, for our eConsult program development and our small rural community raised millions of dollars just 10 years ago to fund the construction of our new facility. Our community is committed to its hospital and the services it provides to the entire Stormont, Dundas and Glengarry region. We also provide care to many patients from South Ottawa and to those from the severely underserviced areas around Cornwall as well. Unfortunately, we cannot function without full scope family practice physicians as over 65% of the physicians with admitting privileges are just that – Family Physicians.

In order to continue to provide the high quality care to patients that our communities have come to expect, we need to continue to recruit new Family Physicians who will do Emergency Room shifts, care for inpatients and provide OR assists and Obstetrical services. We have an aging physician demographic with 3 retirements in the last year and an expected 3 – 5 more in the coming 3 years. We must be able to recruit new physicians to take over the care of patients when our colleagues retire. These physicians may choose not to practice in a designated “underserviced area” and therefore would not be able to provide care in our hospital while working for 3 years in their community of choice.

To add to this issue, the number of patients each of our Family Physicians cares for is very large (1800-2400 patients per physician for those in practice for 5 years or more). We provide full scope office care in addition to our hospital work. Most of the physicians who do not plan to retire in the coming 3 years would like to be able to transfer part of their patient load to a new physician but again, without new graduates being able to take some of the load, our patients will continue to suffer from inadequate access due to supply-demand imbalances that can never be rectified.

We are writing to you and forwarding a copy of this letter of concern to our local media to raise awareness about the impact the “New Graduate Entry Program” will have on rural hospitals like Winchester and District Memorial Hospital and communities like those in Eastern Ontario. We hope to see this program eliminated as we see it as a poorly thought out plan to restrict practice and payments for new physicians who only want to contribute to the care and treatment of the ill and infirm of Ontario.

Sincerely,

Marilyn Crabtree, MD, CCFP”

Dr. Crabtree’s letter caused quite a stir in her corner of Eastern Ontario because it foretold a loss of medical services. There was a view by some that she was fearmongering but, in fact, every word she wrote is true and thank goodness the Medical Staff of the Winchester and District Memorial Hospital was concerned enough to call out the Minister on a plan that was clearly not designed with smaller hospitals in mind. (The NGEP has many other flaws but, in this case, I wanted to focus on one particular problem.)

When I spoke with Dr. Crabtree, she did not seem entirely comfortable that she had upset people. It is only natural that a good doctor, used to helping people stay calm, balks at upsetting the community. It takes a lot of courage for her, and the Medical Staff she represents, to say very publicly, “This is wrong and we don’t support it.” The task of a good Medical Staff Organization is to raise awareness when the health of patients or a community might be affected. This is exactly what happened and the Winchester community now understands the impact some of the Liberal government’s plan for health care might have in their hospital and for their primary care.

Let’s hope the other community leaders are doing as good a job as the doctors to preserve the community health system they have all worked hard to build.

What I Want From Justin Trudeau for Healthcare

It seems as though everyone is lobbying the new Prime Minister on Twitter and Facebook for their own pet promise from the election campaign and, on the day he and his cabinet are sworn in, I would like to add my own request to the clamour. I will warn readers that I am not asking for any grandiose reworking of our existing system. Many are already tweeting and lobbying for that. I am asking for two practical things that would make patients’ care better.

One of the things that Trudeau has promised is to undertake infrastructure investment so there is no better time, in my view, to consider investing in infrastructure for health. Those of us who work in healthcare know that, in this era of governments cutting back on health spending, many hospitals are neglecting upgrades or replacement of aging infrastructure. In fact, anyone who has visited a hospital lately can likely attest to the fact that the infrastructure that supports healthcare is crumbling. Hospitals are naturally choosing patient care over roof repair.

There are two health infrastructure projects that I would like to recommend for Justin Trudeau’s consideration. (I am referring to him casually since that is what most people are doing on Twitter and Facebook and, hey, we’re all friends now, right?)

The first project is the health care infrastructure for long-term care facilities. This proposal was introduced by the Canadian Medical Association in 2012- 2013 for the pre-budget consultations. The CMA recommended that the government invest in both new long-term care facilities as well as in renovations to existing facilities. This recommendation recognized that there was a need to build capacity for long-term care services, a need that still exists today. Their vision was for long-term care residences, assisted living units and “other innovative residential models”. An example of the latter was outlined just yesterday in the Ottawa Citizen: http://ottawacitizen.com/news/local-news/seniors-hub-will-be-a-radical-social-innovation There is no reason that this model cannot be replicated in other parts of Canada as well. Those who are interested in the full Canadian Medical Association Proposal can find it here: https://www.cma.ca/Assets/assets-library/document/en/advocacy/Health-Infrastructure_en.pdf An investment in long-term care facilities has the potential to save thousands of dollars in hospital costs and it will ensure a better life for Canada’s seniors.

My second request is for a fully functional, portable, all-the-bells-and-whistles (technical language) electronic health record (EHR). I want the electronic health record to be accessible to me, to my regular care providers and to any care providers who have to see me on an urgent basis. I want every new test result, every new consultation and each changed prescription to be recorded immediately. It would be great if my care provider could update the information almost effortlessly.

In my view, there is absolutely no reason that the cost of such an impressive tool should not be paid for as health infrastructure since it will pay for itself. I think it might even pay for itself quickly in savings realized from avoiding duplication of tests, savings from e-prescribing and savings from the efficiencies that could be gained from such a foolproof tool. The full benefits of an electronic health record can be found on the website of Canada Health Infoway: https://www.betterhealthtogether.ca/digital-health-in-canada/the-benefits-for-you/diagnosis-and-treatment

Over half the medical practices in Canada are now using an electronic health record but most of these electronic records do not communicate with each other. For example, I have an electronic health record at my hospital but, if my patient is seen in the emergency room at the Children’s Hospital of Eastern Ontario (CHEO), I must wait for a letter by fax or mail sent from CHEO’s electronic health record to know what happened from the perspective of the staff of CHEO.

Also, these electronic health records are not easy to use. I have had to have courses on using the EHR at my hospital and that at CHEO.

I know it’s asking for a lot but I would like to ask Justin Trudeau to get the electronic health record problem solved. It has to be secure, but readily accessible. It should be possible to access the information it contains from anywhere and update automatically to ensure easy follow-up from one interaction to the next. If this sounds like too tall an order for the healthcare sector, then I respectfully suggest that we ask the banks for help. Everything I want in a health record already exists for my financial records, and I can carry the whole thing around with me in one little plastic card.

These, then, are my requests for healthcare infrastructure. As Justin Trudeau and his new Cabinet are sworn in, I join millions of Canadians wondering whether this, or any, government can live up to those first expectations.

 

Physician Activism: Less isn’t more

Dr. Jon Johnsen is an Ontario Medical Association Board Member from Thunder Bay. He is the current Board Member in a long line of remarkable Board Members from Thunder Bay. As a matter of fact, the two Board members who preceded him, Dr. Stewart Kennedy and Dr. Ken Arnold, both served as President of the OMA. These are tough acts to follow.

Dr. Johnsen was also a member of the 2014 Negotiations Team, which means that he understands the current situation with the Ontario government very well. He is very much aware that doctors are being asked to do more with less.

He wrote this letter to his local newspaper , The Chronicle Journal. I am recirculating it here for  you to read.

http://www.chroniclejournal.com/opinion/letters_to_editor/less-isn-t-more-docs-know-that-gov-t-doesn/article_a3c3b056-7f49-11e5-9fc0-f7a0c738a12d.html?mode=jqm